Nurses play a crucial role in the multidisciplinary management of achondroplasia. Their responsibilities include:
Monitoring Growth and Development
Nurses should regularly monitor the growth and development of children with achondroplasia, comparing their progress with standardized growth charts specifically designed for this condition.
Educating Families
Education is key. Nurses should provide families with information on what to expect, how to manage symptoms, and when to seek medical attention. They should also educate on preventing obesity and encouraging physical activity tailored to the child's abilities.
Coordinating Care
Nurses often act as coordinators among various healthcare professionals, including [pediatricians](href), orthopedic surgeons, ENT specialists, and genetic counselors, ensuring comprehensive care.
Managing Complications
Nurses should be vigilant in recognizing and managing complications such as respiratory issues, infections, and neurological symptoms. They should provide appropriate interventions or referrals as needed.
Providing Emotional Support
Living with achondroplasia can be challenging. Nurses should offer emotional support to both patients and their families, addressing any concerns they may have and connecting them with resources like support groups.