Nurses play a crucial role in the holistic management of patients with FA. Key responsibilities include:
Patient Education
Nurses provide essential information about the disease, its progression, and management strategies. This includes educating patients and families about the importance of regular follow-ups, medication adherence, and lifestyle modifications.
Symptom Management
Nurses help manage symptoms such as muscle weakness, spasticity, and pain. This may involve coordinating with physical and occupational therapists, and providing guidance on exercises and assistive devices.
Cardiovascular Care
Given the risk of cardiomyopathy, nurses monitor cardiovascular status through regular assessments and coordinate care with cardiologists. They educate patients about recognizing symptoms of heart failure and the importance of cardiac medications.
Diabetes Management
For patients with diabetes, nurses provide education on blood glucose monitoring, insulin administration, and dietary management. They also monitor for complications and adjust care plans as needed.
Psychosocial Support
FA can have a significant emotional and psychological impact. Nurses offer support and counseling, facilitate support groups, and connect patients with mental health resources to help them cope with the challenges of the disease.
