What are the Challenges in Nursing Care for Friedreich's Ataxia?
Caring for patients with FA presents several challenges, including:
Progressive Nature of the Disease FA is a progressive disorder, requiring continuous adaptation of care plans to meet changing needs. Nurses must stay informed about the latest treatment options and interventions.
Multidisciplinary Coordination Effective management of FA requires a multidisciplinary approach. Nurses must coordinate care with various specialists, including neurologists, cardiologists, endocrinologists, and therapists.
Lack of Cure Currently, there is no cure for FA, and treatment focuses on symptom management and improving quality of life. Nurses must balance hope with realistic expectations and support patients in navigating the emotional aspects of chronic illness.
